A review of cultural adaptations of screening tools for autism spectrum disorders

Autism. 2015 Aug;19(6):646-61. doi: 10.1177/1362361314541012. Epub 2014 Jul 9.

Abstract

Screening children to determine risk for Autism Spectrum Disorders has become more common, although some question the advisability of such a strategy. The purpose of this systematic review is to identify autism screening tools that have been adapted for use in cultures different from that in which they were developed, evaluate the cultural adaptation process, report on the psychometric properties of the adapted instruments, and describe the implications for further research and clinical practice. A total of 21 articles met criteria for inclusion, reporting on the cultural adaptation of autism screening in 19 countries and in 10 languages. The cultural adaptation process was not always clearly outlined and often did not include the recommended guidelines. Cultural/linguistic modifications to the translated tools tended to increase with the rigor of the adaptation process. Differences between the psychometric properties of the original and adapted versions were common, indicating the need to obtain normative data on populations to increase the utility of the translated tool.

Keywords: autism; cultural adaptation; screening tools.

Publication types

  • Research Support, N.I.H., Extramural
  • Review
  • Systematic Review

MeSH terms

  • Autism Spectrum Disorder / diagnosis*
  • Child
  • Cultural Competency*
  • Humans
  • Language
  • Psychometrics
  • Surveys and Questionnaires
  • Translating*