Recognition of and intent to use gastrostomy or ventilator treatments in older patients with advanced dementia: differences between laypeople and healthcare professionals in Japan

Geriatr Gerontol Int. 2015 Mar;15(3):318-25. doi: 10.1111/ggi.12276. Epub 2014 Mar 20.

Abstract

Aim: We compared differences between laypeople and healthcare professionals in the recognition of and intent to use gastrostomy and ventilator treatments in older patients with dementia.

Methods: Between November 2011 and January 2012, a questionnaire survey was carried out. People who underwent a general health check-up at Nomura Hospital Preventive Medical Center were recruited as the laypeople group. Physicians and nurses working in Mitaka, Tokyo, Japan, were recruited as the healthcare professional group. We assessed the recognition rate of ventilator and gastrostomy treatments. Then we provided two scenarios for participants to determine whether these methods represented life-sustaining treatments that will simply delay an inevitable death. Intentions were compared between cases with and without advance directives.

Results: Approximately 60% of laypeople did not know what gastrostomy is. Healthcare professionals were more likely to recognize a ventilator as a life-sustaining treatment; in contrast, there were no significant differences in judgments regarding gastrostomy. Both groups were more likely to have intent to use a gastrostomy and a ventilator for family members than themselves. Furthermore, healthcare professionals were more likely to want to use these items for patients than their family members. Advance directive for withholding life-sustaining treatment reduced the intention to use these treatments.

Conclusion: It is necessary to increase our understanding regarding knowledge of end-of-life care options of both laypeople and healthcare professionals.

Keywords: advance directives; end-of-life care; gastrostomy; ventilator; withholding treatment.

Publication types

  • Comparative Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Advance Directives*
  • Aged
  • Attitude of Health Personnel*
  • Cross-Sectional Studies
  • Decision Making*
  • Dementia / epidemiology
  • Dementia / therapy*
  • Female
  • Gastrostomy / statistics & numerical data*
  • Humans
  • Incidence
  • Japan
  • Male
  • Respiration, Artificial / statistics & numerical data*
  • Retrospective Studies
  • Surveys and Questionnaires
  • Terminal Care / methods
  • Terminal Care / statistics & numerical data*