Abstract
Mitochondrial diseases represent a genetically and clinically heterogeneous group of inherited metabolic disorders, often resulting in poor functional and survival outcomes for the patient and considerable psychosocial distress for the caregiver. The systematic review undertaken in the present paper emphasizes the critical role of the caregiver in the management of a child with mitochondrial disease, with focus on the burden of mitochondrial disease on the caregiver, the family, and society.
MeSH terms
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Activities of Daily Living / classification*
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Activities of Daily Living / psychology*
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Anxiety Disorders / diagnosis
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Anxiety Disorders / genetics
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Anxiety Disorders / psychology
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Caregivers / psychology*
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Child
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Cost of Illness*
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Depressive Disorder / diagnosis
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Depressive Disorder / genetics
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Depressive Disorder / psychology
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Female
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Genetic Predisposition to Disease
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Humans
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Male
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Mitochondrial Diseases / genetics
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Mitochondrial Diseases / psychology*
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Mitochondrial Diseases / therapy*
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Mothers / psychology
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Personality Inventory
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Quality of Life / psychology*
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Social Support*
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Stress, Psychological / complications