Monitoring quality of life among prostate cancer survivors: the feasibility of automated telephone assessment

Urology. 2012 Nov;80(5):1021-6. doi: 10.1016/j.urology.2012.07.038. Epub 2012 Sep 16.

Abstract

Objective: To examine the feasibility of using automated interactive voice response calls to assess prostate cancer survivor quality of life (QOL). In light of an increasing focus on patient-centered outcomes, innovative and efficient approaches to monitor QOL among prostate cancer survivors are increasingly valuable.

Methods: Forty prostate cancer survivors less than 1 year post-treatment were enrolled at a university-based cancer center clinic from July through August 2011. We adapted the Expanded Prostate Cancer Index Composite (EPIC) survey, a prostate cancer-specific QOL instrument, for use via personal telephone with interactive voice response. We compared written vs interactive voice response EPIC scores across urinary, sexual, bowel, and vitality domains.

Results: The median age of respondents was 63 years (range, 41-76 years) and the majority had undergone surgery (97.5%). The entire interactive voice response call was completed by 35 participants (87.5%). Over half of all interactive voice response calls were answered after 2 attempts with a median length of 11.3 minutes. On average, interactive voice response EPIC scores were slightly lower than written scores (-2.1 bowel, P = .05; -4.6 urinary incontinence, P < .01). Test-retest reliability was very high for urinary incontinence (r = .97) and sexual function domains (r = .96). Although mean scores were similar for other domains, their distributions had significant ceiling effects limiting our reliability measure interpretation.

Conclusion: Automated interactive voice response calls are a feasible strategy for assessing prostate cancer survivor QOL. Interactive voice response could provide a low cost, sustainable, and systematic approach to measuring patient-centered outcomes, conducting comparative effectiveness research, and monitoring the quality of prostate cancer care.

Publication types

  • Comparative Study
  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Aged
  • Automation / methods*
  • Comparative Effectiveness Research
  • Feasibility Studies
  • Humans
  • Interviews as Topic*
  • Male
  • Middle Aged
  • Prospective Studies
  • Prostatectomy / psychology*
  • Prostatic Neoplasms / epidemiology
  • Prostatic Neoplasms / psychology*
  • Prostatic Neoplasms / surgery
  • Quality of Life*
  • Reproducibility of Results
  • Survival Rate
  • Survivors / psychology*
  • United States / epidemiology