Development and reliability of the THAICLEFT Quality of Life Questionnaire for children with cleft lip/palate and families

J Med Assoc Thai. 2010 Oct:93 Suppl 4:S16-8.

Abstract

Objective: The objective of this study was to develop and test the reliability of the THAICLEFT Quality of Life (QoL) questionnaire for families of children coping with the problems associated with cleft lip/palate (CLP).

Material and method: After reviewing the literature on QoL measurements, the THAICLEFT QoL questionnaire was developed. The 27 families registered with the Tawanchai CLP service registry completed the questionnaire.

Results: The Cronbach's alpha, i.e., the internal consistency and reliability, of 24 Quality of Life questionnaires was calculated. Values > 0.7 are considered acceptable and the value of the THAICLEFT QoL questionnaire was 0.861.

Conclusion: Using the THAICLEFT QoL questionnaire can help the healthcare provider to support parents and understand whether they are able to care for the patients and their psycho-economic needs.

Publication types

  • Validation Study

MeSH terms

  • Adaptation, Psychological
  • Child
  • Cleft Lip / diagnosis
  • Cleft Lip / economics
  • Cleft Lip / psychology*
  • Cleft Palate / diagnosis
  • Cleft Palate / economics
  • Cleft Palate / psychology*
  • Family / psychology*
  • Health Services Needs and Demand
  • Humans
  • Pilot Projects
  • Quality of Life / psychology*
  • Registries
  • Reproducibility of Results
  • Surveys and Questionnaires / standards*
  • Young Adult