Internet-based caregiver support for Chinese Canadians taking care of a family member with alzheimer disease and related dementia

Can J Aging. 2009 Dec;28(4):323-36. doi: 10.1017/S0714980809990158.

Abstract

ABSTRACTThe aim of this study was to assess the usability of a new Internet-based Caregiver Support Service (ICSS) and evaluate its effects on health outcomes of Chinese Canadians who cared for a family member with dementia. Demographic and questionnaire data were collected from 28 participants, and in-depth interviews were conducted with 10 participants. Results showed that non-users reported higher levels of burden post-intervetion, and frequent users showed post-intervention reduction in experienced burden. Traditional beliefs shaped caregivers' needs; also, ethno-cultural-linguistic contexts affected system usability and were associated with usage behaviour. This study indicates that caregivers can benefit from receiving professional support via asynchronous e-mails and a dedicated information web site. The ICSS is a feasible approach for supporting caregivers who prefer an alternative service model. This emerging service requires more research in: enhanced technology design, service delivery models for immigrant caregivers, and evaluation of effectiveness and cost-effectiveness.

MeSH terms

  • Adult
  • Alzheimer Disease / psychology*
  • Canada
  • Caregivers / psychology*
  • China / ethnology
  • Culture
  • Dementia / psychology*
  • Feasibility Studies
  • Female
  • Humans
  • Internet*
  • Interviews as Topic
  • Language Arts
  • Male
  • Middle Aged
  • Program Evaluation
  • Sampling Studies
  • Social Support*
  • Surveys and Questionnaires