On the importance of intellectual property rights for e-science and the integrated health record

Health Informatics J. 2008 Jun;14(2):95-111. doi: 10.1177/1081180X08089318.

Abstract

An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record.

MeSH terms

  • Computer Communication Networks* / legislation & jurisprudence
  • Copyright / legislation & jurisprudence
  • Humans
  • Intellectual Property*
  • Medical Records Systems, Computerized* / legislation & jurisprudence
  • Ownership* / legislation & jurisprudence
  • Systems Integration