A measure of functional impairment in youth with Tourette's syndrome

J Pediatr Psychol. 2007 Sep;32(8):950-9. doi: 10.1093/jpepsy/jsm034. Epub 2007 May 23.

Abstract

Objective: Tourette's Syndrome (TS) during childhood is linked to varied behavioral and psychological difficulties and functional impairment. The current study was undertaken to examine both tic-related impairment and impairment from other psychological problems in 59 youth (mean age 11.4 years, 69% male) with TS.

Methods: Caretakers completed a checklist about the impact of tics and other psychological difficulties on family, school, and social functioning. In addition, a clinician administered a measure of tic severity to families.

Results: Over half of the sample reported one significant problem area due to the presence of tics, with over a third reporting two or more problem areas. Problems were heterogeneous in nature, with no report of a particular problem area in more than 25% of the children. The rate of nontic-related impairment was very high, with 70% of parents reporting at least one problem area.

Conclusions: Treating both tic and nontic-related impairments concurrently may improve functioning more so than treating the symptoms separately.

MeSH terms

  • Caregivers
  • Child
  • Female
  • Humans
  • Male
  • Observer Variation
  • Prevalence
  • Quality of Life
  • Severity of Illness Index*
  • Surveys and Questionnaires
  • Tourette Syndrome* / diagnosis
  • Tourette Syndrome* / epidemiology
  • Tourette Syndrome* / physiopathology