Privacy and the Human Genome Project

Ethics Behav. 1996;6(3):189-202. doi: 10.1207/s15327019eb0603_2.

Abstract

The Human Genome Project has raised many issues regarding the contributions of genetics to a variety of diseases and societal conditions. With genetic testing now easily conducted with lowered costs in nonmedical domains, a variety of privacy issues must be considered. Such testing will result in the loss of significant privacy rights for the individual. Society must now consider such issues as the ownership of genetic data, confidentiality rights to such information, limits placed on genetic screening, and legislation to control genetic testing and its applications. There is often a conflict between individual rights to privacy and the need for societal protection.

MeSH terms

  • Confidentiality*
  • DNA Fingerprinting
  • Databases, Factual
  • Databases, Nucleic Acid
  • Emigration and Immigration
  • Eugenics
  • Genetic Predisposition to Disease
  • Genetic Privacy*
  • Genetic Research
  • Genetic Testing*
  • Genetics
  • Genetics, Behavioral*
  • Human Genome Project
  • Humans
  • Insurance, Health
  • Law Enforcement
  • Pedigree*
  • Privacy*
  • Reproduction
  • Social Control, Formal
  • Violence*