Quality of life in patients with blepharospasm

Acta Neurol Scand. 2001 Jan;103(1):49-52. doi: 10.1034/j.1600-0404.2001.00109.x.

Abstract

Objectives: Administration of botulinum neurotoxin A (BONT/A) is a common and effective treatment of blepharospasm. There is, however, no information regarding the emotional and social well-being of patients with blepharospasm and patient acceptance of BONT/A therapy. The purpose of this study was to investigate aspects of quality of life of patients with blepharospasm and level of patient satisfaction with treatment.

Material and methods: Fifty-one patients with blepharospasm who had been treated with BONT/A for years completed a questionnaire providing information about quality of life.

Results: Results revealed reductions in social and emotional well-being of patients but, nonetheless, good acceptance of BONT/A therapy. The positive effects of BONT/A therapy were, however, accompanied by fear of a decreasing effect of BONT/A injections.

Conclusion: Although the objective findings following BONT/A injections in the treatment of blepharospasm are appreciated by the patients, their well-being is affected by fears and depression.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Blepharospasm / drug therapy
  • Blepharospasm / psychology*
  • Botulinum Toxins, Type A / administration & dosage
  • Female
  • Humans
  • Injections, Intramuscular
  • Male
  • Middle Aged
  • Patient Acceptance of Health Care / psychology
  • Patient Satisfaction
  • Quality of Life*
  • Sick Role
  • Social Adjustment

Substances

  • Botulinum Toxins, Type A