Implantable central venous access devices CVADs have increased in their use. A Portacath makes venous access quicker and reduces the trauma associated with siting a peripheral cannula. Children with cystic fibrosis have benefited from the use of the Portacath. This study explored the information requirements of twenty six children with cystic fibrosis, and their families who already had an implantable port fitted. Nineteen families had received no written information relating to having a Portacath and seventeen wanted more information. The development of a book was thought appropriate to compliment the other educational strategies already in use.